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Subject: My name is marshall
Replies: 20 Views: 372

9362 13.09.13 - 11:25pm
And i am 4 and a half years old,until 12 months ago i was a normal little boy.I loved playing football and going down the slide in the park and paddling in the sea and i was always laughing and loving.well i am still very loving * +

9362 13.09.13 - 11:29pm
Then i started having fits,lots of different types and i began to have trouble talking and things i could do before i couldn't do anymore.The doctor did lots of tests and told my mummy and nana in april that i have late infantile ncl,a form of batten's disease * +

9362 13.09.13 - 11:33pm
It makes me very special as there are only 20 to 30 children like me in britain.lots of horrible things are happening to me very quickly now.my hands shake so much i can't play with my toys very well now and i have to be fed and i lose my balance all the time * +

9362 13.09.13 - 11:38pm
So i can only walk a little bit and need to be steadied when i do.I fall over all the time and i get covered in bruises but i rarely cry.And there are lots of things what i can't eat anymore because i choke and i can hardly talk anymore,but i love watching toy story and cars and mickey mouse club * +

9362 13.09.13 - 11:41pm
And i have just come back from disneyland in paris.It was amazing and it was like a dream meeting all my heroes.It cost so much money but i had everything i wanted and more because my friends at st luke's hospice had a collection for me * +

9362 13.09.13 - 11:45pm
My grandads work friends also collected lots of money.So i just wanted to send a really big thank you to the staff of st luke's hospice and the taxi drivers and raz at tremaine newsagents and send you all a big hug x x x * +

9362 13.09.13 - 11:49pm
He will die sometime between the ages of 8 and 12,no cure yet for battens disease and staggeringly there seems to be little research into finding one * +

9362 13.09.13 - 11:51pm
And his poor mother,how the hell do you cope with knowing your child is going to die? * +

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